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The Good & The Bad

April 13th 2009 12:23
Why Me??
I just want to enjoy life


Ok, so this weekend was a holiday. Easter. A time to celebrate life! Which I was able to....sort of...seeing the kids and grandkids was great.
The main trigger I have now is the weather. It's been warm, cold, then rainy, thunder storms, high winds, even snow. So this ping pong weather has driven my pain level crazy.

I have seen people on tv with health problems interviewed who have health problems and they are often asked "do you ever ask, why me? They usually say no.
Well, with a few months of gettting a taste of "life" because my pain level was down, now when it's gotten bad again, I do ask why. I am mad. I am sad. I get down.
I'm tired, I'm scared that this is going to be the rest of my life. I don't want it. It hurts too much. I am starting to wake up because of the pain.
A few nights ago I woke up from a nightmare, which I believe I was having because I was in so much pain.
My head has the needles and pins pain. My face hurts. I have time when I could scream with the pain. This morning I woke up feeling sick because of it.
I wa glad to have had the time with family. But the pain is taking over and I am scared, confused, mad, sad. I feel like I have to pay a price for any times that are good.
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Moving and Migraine A Bad Mix!!

January 28th 2009 02:27
migraine, moving
Moving & Migraine!!


In the middle of moving. Packing up so many years worth of living in one home. Of course you go through alot of emotions. Leaving the past behind. Wanting to move on, yet it's hard to move on. This emotional rollercoaster is taking it's toll.

The stress of what to keep, what to get rid of, making sure you don't get rid of something I really wanted to keep.

Then there's the physical part. Packing boxes, lifting them, sorting them, taping, labeling.
It's all so much at once. I have waves of emotions that hit me over and over.
I'll be glad when it's over, we get settled in our new home. I know it'll all be worth it.

Just getting through it now, this is the hard part. The pain rises. It hits just when I don't expect it. I may have to stop right in the middle of what I'm doing, just walk away and lay down. Feelings of guilt for work left undone.
But I'll get it done. I'm tired, anxious and in pain.
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Migraine Misdiagnosed

January 14th 2009 03:14
Migraines Missed as Real Diagnosis
Sinus Headache or Migraine?


I found this in wikipedia to be very interesting:

Recent studies suggest that up to 90% of "sinus headaches" are migraines. The confusion occurs in part because migraine involves activation of the trigeminal nerves which innervate both the sinus region but also the meninges which surround the brain. As a result, direct determination of the site of pain origination can be confused on a cortical level. Additionally, nasal congestion is not an uncommon result of migraine headaches. A study found that patients with "sinus headache" respond to triptan migraine medications, and state dissatisfaction with their treatment when they are treated with decongestants or antibiotics.

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I have been coping with this problem for some time. It's made me very sick at times. I am fortunate to have a doctor who cares and really wants to help me. She is as determined as I am and I feel like we are a team in my treatment.
So many doctors blow off the word migraine, trivialize it. So, it helps me so much that I have a doctor who believes in me and works so hard to help me.
Please, if you don't have a doctor that does not work as hard as you want help, try to find a new doctor.





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My best friend
Missing my best friend wrap="0


I lost my best friend two weeks ago.I knew his time was coming,as he was 14 years old.But suddenly he's gone


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Brain on Migraine
I update daily newsfeeds on my website http://mymigraines.com and always take the time to read them.I was surprised to find an article re: Triptans.These are meds used as migaine abortives,such as Zomig,Imitrex,Relpax.
It has been known for some time triptans taken with certain serotonin inhibators like Paxal and Zoloft could cause Serotonin Syndrome,a rare but potentially fatal drug interaction.In the May 15 issue of the New England Journal of Medicine is the first information triptans on their own have been linked to the disorder.There are 11 cases of Serotonin Syndrome that were reported to the FDA,with the use of triptans alone.These are detailed by the FDA and researchers from Georgetown University in the New England Journal of Medicine.

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chronic pain-are you insane?

May 8th 2008 03:54
Chronic pain,does it make you feel like you're insane?Friends forget you,out of sight,out of mind.Feel like doctors either have given up,are tired of you,or just don't believe you anymore.
Do you get the question,suggestion,that you're depressed?What a remarkable perspective...you're in pain all the time...and you're depressed! I would think if you weren't depressed,something's wrong with you.
I remember when first being treated for migraine,they put me on a med that made me gain weight,like 20pds within 2 months.I went in for a doctor appt and the nurse asked me if I thought it was the weight causing my migraines


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Pollen,fire not good aromatherapy

April 23rd 2008 21:06
I usually don't hope for rain.But my pain level doesn't usually go up because of pollen.Today,I feel and sound like I have the flu.It's bad.
So,I cross my fingers today for rain.When I woke up this morning, it felt like I got hit with a shovel in the head.
The wind is starting to pick up,wouldn't it be great if it blew some of the stuff making me sick away.Who knows.I do know,there have been a number of fires locally.It's dry and when it's windy,I wonder why people are burning.It's horrible to see mountains on fire on the news.You have to wonder what's wrong with some people


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So,I took a chance yesterday and went to lunch with my husband.It was a bright beautiful day out.The kind most people would jump for joy over,especially with all the crappy weather most have been having.
I wore my hat and my sunglasses.I of course take an extra precaution,sunscreen,my brother 3yrs older than me has melanoma.He has to wear sunscreen indoors during the day.
Anyway,we weren't going to be long.Lunch is buffet style.But I had done this a few days before and about an hour afer we got home,I got an aura,the pain level (which I'm always in pain) shot up and nothing helped.So,I had to wait it out for it to come down.I just had an er trip last week and didn't want another


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