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Matters Of The Heart: Talking About The Tough Times - by pieceofmymind

I think I have probably felt every emotion possible within the last few weeks. As I type this post my head is throbbing, probably because of sleep deprivation (or it could be the fact that I’ve been awake since 4:15am and haven’t eaten), but oh well…my ticket out of the twilight zone hasn’t arrived yet.
emoticons
Overload!!!



I am trying to maintain my life while I make sure my grandmother is comfortable in the end of hers. This is not an easy task. I have a husband, four children – all either teen or preteen, two cats, a full-time course load in school, and a job search that has come to a screeching halt because I am needed here. No one can see it, but I have this battle going on inside of myself; one part of me is sad, but the other part of me is angry. One part of me wouldn’t want to be anyplace else at this time, and another part of me feels like this is unfair. I haven’t worked out since before mother’s day, and as far as eating healthy…yeah right. I go from not wanting to eat at all, feeling totally nauseous, to wanting to eat everything. I feel like I am a potential basket case…and the rest of the world moves on.

I am here before six o’clock every weekday morning so my mom can go to work, and I am sitting here until about six o’clock in the evening. My uncle is working, his wife is working, my brother is working, his wife is working…everyone else is moving and shaking, while I sit here (hopefully I won’t start shaking). It amazes me how my whole family, with the exception of my mother who lives in the same house with my grandmother, can move on like nothing is happening. They casually stop by when they feel like it while I feel bad if I take a “break” from being here on the weekends. Even when I am home, my mind is here. I get angry because this is bullshit if you ask me, then I get sad because I feel like I shouldn’t even feel this way, then there is the guilt, then back to anger, then let’s not forget the grief because my grandmother could stop breathing at any given moment…Dr. Phil, Oprah, I may need you before this is all over.


My grandmother is dying, but I don’t want to go with her. I need to get it together because I am on stress overload, and I am taking a physical, mental, and emotional beating. If there was a detour through this part of my life that would be great, for so many reasons; sometimes, I honestly think that the underlying issue here is that I am just sad. I don’t want to let go of my grandmother, and inside I am having a “tantrum”. Maybe I should put myself in time out.
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I'm Not Ready For This.

May 29th 2007 21:00
stormy
Looks Like The Storm In My Life Is About To Get Worse
When I woke up today, I had a feeling that today would be one of those days where something was going to happen. Very early this morning, I just started to expect something, I am not sure what, but I was expecting something nonetheless. So today, I am here at my grandmother’s house with her and she is very, very tired. Not the usual tired, but the kind of tired that is scary. She seems to be almost too tired to do anything, and she seems miserable.

What is scaring me even more is her conversation. Today, she told my mother that she is ready to go. She told my mother that she may not even be here before she gets back from work. Then when my uncle visited, she told him that if she didn’t see her children anymore today, she had done all that she could do. So here I sit, in front of my laptop, about six paces away from where my grandmother lays in her bed. The home health aide will be here at 5:30, but I almost feel like I don’t want to go home. For some reason, I feel like I want to be here with her when she takes her last breath. Is that crazy? I am not sure, but I just feel that way. Since God is the only one who knows exactly when that moment will be, I guess I have to take the time I have and be happy with that. Honestly, my being here is not going to stop it; I think I feel like it is such a big thing to transition out of life that I just want to be here for support.

As I mentioned, she is so tired. It is difficult to have a conversation with her because her voice is so low. Everything makes her tired. As much as I want her to stay, I hate to see her like this. I know that she is suffering, and it seems cruel. It is still early in the day, so I have yet to see what the evening will bring. I hope that the feeling I had this morning turns out to be a fluke. It is difficult to wait for death when you know it is coming. Now I know why no one should ever know the exact date that they are going to die beforehand; I (or anyone else) would lose my mind waiting around for it.

Anyone who reads this, please pray for my family to have strength in this difficult time; we are going to need it.
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The Time Is Getting Closer

May 23rd 2007 20:32
Today is probably the worst day I’ve had since I have been helping take care of my grandmother. Nothing seems to be going too good for her, and I am really learning what it means to provide hospice care. If I had to define hospice care, I would say this: Hospice care is the kind of care that involves caring for people, not to make them better, but to make them comfortable, with the understanding that they are about to leave you forever. As simple as that reads, it is one of the most difficult things I have had to accept in my life. I’m running around, giving medication, making sure that my grandmother has what she needs, but she keeps getting worse. Extreme effort, zero results. At least that’s how it seems for a grand-daughter who loves her grandmother and wants to help her.
Say A Little Prayer


The simple things that she has still been able to do up to this point are becoming an issue. She can’t feed herself, but she still wants to try. That is so heartbreaking to see. I try to help her, and have been doing a good job, but today, she said “Don’t let me be helpless.” That broke my heart, and I just sat there and watched until I couldn’t take anymore of her trying to get a piece of watermelon on the fork for her to eat. I feel so bad for her, but I am somewhat frustrated with myself because I don’t want to feel pity for a woman who has been so strong all of her life. I know she wouldn’t want that. Yet I still find myself looking at her through eyes of sorrow, and even if I am trying to keep myself from the pity feeling, I just ache on the inside to see her in pain. I don’t want my grandmother to be gone off of this earth, but is all the pain worth it? It seems like some cruel and usual punishment…but then I remember that she has been smoking cigarettes for over 60 years. I guess no matter what, the things you choose to do in life catch up with you; some just take a little longer than others.

I also find myself feeling slight animosity toward those who are remaining distant at this time. Now, don’t get me wrong, there are some that we want to stay away, but others, they should be here. My mother and I are working this situation out between the two of us, without the help of anyone else in the family. Not too many people are lifting a finger to do anything; but we all know those are the ones who will probably be hooping’ and hollering’ at the funeral when the time comes. I need to get past that, especially with my uncle. I can’t believe that he would leave this all up to my mother. His conscience is going to wear him down for the rest of his life if he doesn’t get over here and spend some time with his mother.

When her main nurse visited today to check her vitals, the news was not good. Her blood pressure was 80 over 40…wow. That blew me away, and it is really weird because just last week, it was about 116 over 60, or something like that. My mother and I almost had to carry her back from the bathroom today, and that was a first. The worst news we got today was that it could be as soon as a few days from now when my grandmother makes her transition. Anyone who has gone through something like this, or anyone who has been reading my blog understands how hard it is to accept this. The nausea that Charlie’s girl talked about in the comments section…it hit me over the weekend and it hasn’t gone away yet. This is very difficult, and I realize one thing now that I had been in denial about: it is going to get much, much worse before it gets better.
Your text goes here
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Stressin'!

May 22nd 2007 02:01
Sometimes it can be difficult to keep up with my writing while all of this is going on, but here I am. My stress levels are up, and I have been feeling overwhelmed because although my grandmother has two children, only one of her children is really helping to take care of her, and that one child is my mother. My mother and I are very close, so it is not an option for me to leave my mother “stranded” in this situation. For the past few days though, we have both been suffering from sleep deprivation, and overall stress. I know we will make it through this, but in the midst of it all, I am finding it difficult not to feel animosity toward those in the family who find it so easy to go on with their lives like nothing is happening.
stress ball
Just Say No To Stress!


Moving on, since this isn’t really about me or my mother, I have to update you on my grandmother’s condition. Today was weird because it was like she was changing temperaments over and over again. At the beginning of the day, she was her normal self, or at least the self that I have gotten used to dealing with. By midday, she had started to behave as if she was on some sort of downer. She was talking to me, and for the first time in a while, it seemed like she was talking to me in her right mind, but she was talking really, really slow. She went from having pain to not having any, or at least that’s what she said; that is another thing that she does. For some reason, she doesn’t like to tell us when she is having pain, so we have to inquire and put two and two together with regard to how her face looks and what she is, or is not, able to do


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Accepting The Unthinkable

May 19th 2007 17:39
Yesterday was a rough day. That’s probably why I am posting today instead of last night. The morning started out with problems. When I arrived, I went into my grandmother’s room like normal to greet her, but when I hugged her, she complained of pain. I felt bad because I didn’t mean to hurt her, but I was also surprised by that because she hadn’t mentioned any pain the day before. So I gave her all of her normal medications, a pain pill, and a cigarette, of course.

Four hours later, she was complaining of pain again, and although she was trying to act like it wasn’t that bad, I could tell that the pain was severe. She was in so much pain she could barely move around in bed and that was difficult to see. Anyway, she sat up for a few minutes, and we talked. Her conversation can be about almost anything now. Sometimes it seems like she is really talking to me, but then she goes off to another place, and some of the things she says make no sense at all. Since we are a family that has always kept humor in everything, it makes it easier sometimes. Some of the things she says are funny, like the other day when my mother asked her what her name was, and she said her name was “Bad Ass Candy”, that was hilarious. My mom and I both laughed at that, and whenever we start laughing, my grandmother does too; in some weird way, it is almost therapeutic because it is like we are sharing something


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A Weird, Quiet Day With Grandma

May 18th 2007 02:11
Today at my grandmother’s house was weird because it was one of those days where it was almost totally quiet. The phone didn’t really ring, and no one visited. It was just me and her. I usually set up my laptop when I get there in the mornings, and the chair I sit in is right across from her bedroom, so literally, all I have to do is look over, and I can see her sleeping. I felt like I was losing my mind because I started to observe her breathing pattern, and it looked to me as if she wasn’t breathing. So then I became “psycho” grand-daughter and just kept looking over to be sure she was still with me. I did some research on the Internet to find information on the stages of cancer, death, and dying. I learned that it is not uncommon for someone in her condition to have long pauses in breathing and overall irregular breathing patterns. Talking to one of her hospice nurses over the phone also confirmed this for me, so I was able to make it through the day, but that doesn’t mean that I stopped looking.

When I got there at like six o’clock this morning, she was trying to get up and clean herself up so that she wouldn’t have to “burden” me throughout the day; she sees me working on my laptop and thinks that my work is so important that it is an “interruption” if she needs my help. I would be lying if I said that this situation doesn’t make my life seem like it is in total disarray, but given the circumstances, I honestly don’t think that I would rather be anyplace else. I explained to my grandmother that she was not a burden to me, and that I was there to help her. I told her that she should always let me know if she needed anything, so after that, she decided against getting up; now she wanted to take a couple puffs of a cigarette


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How Can I Do This?

May 17th 2007 01:16
I decided that it might be somewhat therapeutic for me to share my feelings about this very difficult time in my life with the world. I know my situation may not be that important to those of you on the outside reading into my life, but I know that there is someone in this world who can relate. If that person is you, feel free to share your comments and feelings because this is just hard – there is really no other way to put it.

As I sit here writing this blog post my grandmother is dying from lung cancer. She was diagnosed with stage four lung cancer three years ago, so basically, I’ve known for some time now; however, the recent chain of events just make it feel like I am finding out all over again. At the point of her initial diagnosis, for some reason, we all – myself, my mother and my uncle - just “knew” that we would have a lot more time with my grandmother than the doctors had predicted. Amazingly, we were blessed enough to be right…three years ago they gave my grandmother six months to live, but again, that was three years ago. We thank God for the extra time, especially now, because suddenly, our lives have been turned upside down


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