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Living with a DISABILITY - CRPS/RSD - by Tracie Jarvis - The Power of Talk

Living with a DISABILITY - CRPS/RSD - October 2006

CRPS photos of my pain - yuck!

October 18th 2006 02:30
Here you will find photos of how CRPS/RSD affects me.

They are just disgustinig.

legs comparison
alien legs

odd feet
this isnt 2 different feet


swollen leg
heading for the marshallow look!

close up of foot
shiny shiny















These are how my legs look on a normal day.


The photos are a good reflectioon of discolouration, swelling, papery skin, shiny skin, lack of circulation, skin atrophy, tissue atrophy, dryness, scaling, nail changes.

Keep in mind the look is no measure of the pain created with this disability.
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Hairy Legs - living with a disability

October 17th 2006 04:44
OK, here's a bit of a story...tell me if you relate to it.

Although this story is based on a disability everyone that shaves their legs will smile.

As a background, skip this if you like,the disability mentioned is: Complex Regional Pain Syndrome or RSD - Reflex Sympathetic Dystrophy Syndrome or CRaPS!!. I also have a prosthetic disc in my spine and permanent nerve damage which has left me unable to walk unassisted.

I have hairy legs and am desperate to shave them. To feel feminine again even for a day is like gold to me.

I use a chair in the shower to wash my hair, so I think I can shave my legs while sitting on the chair. I am also thinking because the only place I have hair on my legs is the front, (perhaps the shin area ) the rest of my legs are hair free, it should be minimal time, pain and effort. The scant covering of hair has only happened since I developed CRPS.

I HAVE FOUND A GOOD SYMPTOM OF CRPS. - or so I think.

But before having my shower, another special treat for myself, I spend the next 1/2 hour looking through my wardrobe searching for just the right garment. Finally, I settle on a lovely summer dress made of stretch fabric -not too tight, not too loose- just perfect for CRPS sufferers.

Now for the shower, usually I procrastinate for most of the day before making myself begin the routine of safely showering, drying and dressing. But today is different, today I am shaving my legs for the first time since the accident.

So, now, in the shower, seated safely, the water is streaming beautifully hot in just the right position so that I won't hurt myself moving around, the razor, shining and new is sitting on the ledge.

And here I go, the first stroke..oh, no, what's wrong?? didn't I take the cover off?? that wouldn't be a surprise, I forget so much especially the simplest detail. Something is causing an obstruction. On further inspection I find it's all clogged up.

What is going on, I know I'm not really a hairy person?

I try again, and again, the amount of hair clogging the razor is unbelievable!! I know we may have descended from the apes, but this is ridiculous!!

It took me forever to shave each leg, the drain is struggling with the amount of hair fighting it's way through with the soapy water, I may as well have had hair all over my legs rather than the scantly area it had grown.

Oh no! now I remember - in my research of anything CRPS, symptoms included changes in hair growth - hair falling out, hair growing LONGER or even thicker.
I realise now, the small amount of covering on my legs is so long it may as well have been braided!!

Somehow in my forgetful self I need to remind myself of this, perhaps in the future waxing or shaving sooner - even if my husband does it.

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