crappy day
February 24th 2007 09:15
MATURE CONTENT
Living with a DISABILITY - CRPS/RSD - by Tracie Jarvis - The Power of Talk
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Fearing the Christmas rush
November 23rd 2006 02:01
Christmas is without a doubt my absolute favourite time of the year.
The rushing, busyness, excitement, stress, family values, endless cards, get-togethers and parties. WOW, sometimes I can hardly wait till it all comes around.
The most difficult part for me this year is I just can’t cope. I get so terribly anxious when I step out into the real world. Everyone and everything is moving too fast. I think I will stumble, fall, get swallowed up in all the commotion.
Yesterday I had to make a payment on a Christmas lay-by. I stressed so terribly bad before I went and the whole time I was out. I even paid off almost all the lay-by so I didn’t have to go back again soon. I used to love shopping. I didn’t have to spend money, just looking and dreaming was enough to keep my occupied for hours. Now, I try to stay at home as much as I can, fearing the world and all it has to offer. Some days I think I will cope well, but I still find myself putting off everything that brings me into any sort of situation outside of my own home. I have found myself shopping online for Christmas gifts. The delivery drivers know just where to come and never judge my instability. They know to wait a bit in-case I’m at the other end of the house or in the bathroom. They know I am slow to get to the door. They know I can’t go for a walk, so if the car isn’t there then I wont be either. For some reason this comforts me. I don’t have to ignore stares or be scared that someone will knock into me or trip me accidentally. I don’t have to face people I know asking me how I’m going, are you better?, is this permanent?
Almost happily I am isolating myself more and more, developing a whole new world. Sometimes not even looking back, other times, stopping, looking and crying uncontrollably at how my life has changed. Although my husband re-assures me I will get through this, that although I am missing the life I once had, I still have a whole new life ahead of me. I should be excited at a whole new world. A different lifestyle, different opportunities (whatever they may be) and most defiantly a new way of appreciating the precious life I have. Lost in though gazing into the hills, one day I will have a peace and contentment.
.
The rushing, busyness, excitement, stress, family values, endless cards, get-togethers and parties. WOW, sometimes I can hardly wait till it all comes around.
The most difficult part for me this year is I just can’t cope. I get so terribly anxious when I step out into the real world. Everyone and everything is moving too fast. I think I will stumble, fall, get swallowed up in all the commotion.
Yesterday I had to make a payment on a Christmas lay-by. I stressed so terribly bad before I went and the whole time I was out. I even paid off almost all the lay-by so I didn’t have to go back again soon. I used to love shopping. I didn’t have to spend money, just looking and dreaming was enough to keep my occupied for hours. Now, I try to stay at home as much as I can, fearing the world and all it has to offer. Some days I think I will cope well, but I still find myself putting off everything that brings me into any sort of situation outside of my own home. I have found myself shopping online for Christmas gifts. The delivery drivers know just where to come and never judge my instability. They know to wait a bit in-case I’m at the other end of the house or in the bathroom. They know I am slow to get to the door. They know I can’t go for a walk, so if the car isn’t there then I wont be either. For some reason this comforts me. I don’t have to ignore stares or be scared that someone will knock into me or trip me accidentally. I don’t have to face people I know asking me how I’m going, are you better?, is this permanent?
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Posted By: Tracie Jarvis - The Power of Talk - Category: living with a disability
CRPS photos of my pain - yuck!
October 18th 2006 02:30
Here you will find photos of how CRPS/RSD affects me.
They are just disgustinig.
These are how my legs look on a normal day.
The photos are a good reflectioon of discolouration, swelling, papery skin, shiny skin, lack of circulation, skin atrophy, tissue atrophy, dryness, scaling, nail changes.
Keep in mind the look is no measure of the pain created with this disability.
They are just disgustinig.
alien legs
this isnt 2 different feet
heading for the marshallow look!
shiny shiny
These are how my legs look on a normal day.
The photos are a good reflectioon of discolouration, swelling, papery skin, shiny skin, lack of circulation, skin atrophy, tissue atrophy, dryness, scaling, nail changes.
Keep in mind the look is no measure of the pain created with this disability.
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Posted By: Tracie Jarvis - The Power of Talk - Category: living with a disability
Hairy Legs - living with a disability
October 17th 2006 04:44
OK, here's a bit of a story...tell me if you relate to it.
Although this story is based on a disability everyone that shaves their legs will smile[ Click here to read more ]
Although this story is based on a disability everyone that shaves their legs will smile
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Posted By: Tracie Jarvis - The Power of Talk - Category: hairy legs
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