This blog is a book idea I am working on based on my life experience with chronic renal failure. Chapters will include: Life with chronic renal failure, Kindergarden crush, The trouble with teachers part 1, The trouble with teachers part 2, Stevens-Johnson Syndrome..., Balancing Dialysis and grade school, Father and Daughter complications, Junior High was party time, Vanity can kill a kidney, Balancing Dialysis and High School, Will I ever get a working Kidney transplant again?, It’s a miracle!. I am looking for ideas to make this book more interesting so it can be published some day.

Moderated by:

J. J. Lynn

E-mail Subscription

Receive an e-mail notification of new posts on this site:

Spotlight Posts

Prologue: Renal failure is not a death sentence

[ more ]

Life with chronic renal failure - dialysis patient, kidney, dialysis, childhood

[ January 2007 ] [ March 2007 ]

Life with chronic renal failure - February 2007

Chapter 12:Complications with my fistula

February 25th 2007 14:44

My fistula was getting quit the work over getting stuck with the 17 gauge needles three days a week going on six years straight. Towards the end of my third semester my fistula clotted off.

It started with my arm aching and swelling up. By the time I was rushed to Cleveland, where I was now at the Clinic instead of Rainbow babies and children, it was so painful no one could touch it without me screaming. I had a thrombosis. A fistula Thrombosis is a blood clot in the fistula. The sooner it is treated the more likely the fistula will still work.

[ Click here to read more ]

Vote

Add Comments

[ Link ]

Posted By: J. J. Lynn - Category: No Category

Email this Post to a Friend

Chapter 11: College Drama

February 17th 2007 14:39

I got a fresh new start at Kent State University Trumbull Campus. Between the Pell Grant, Ohio Grant and Rehabilitation services most everything was paid. My Dad, with a bit of begging, paid for my books. We were getting along better by the time I started college.

My mom left my Dad when I was 18 mostly because she was really involved in her local union and my Dad wanted her home making dinner instead of at meeting after work. But it was slightly because the fights I had with me dad and the fights my brother was have with my mom. When they divorced I went to live with my mom because I knew I needed someone who would help me in a medical crisis. Plus, me and my Dad are so much a like living in the same house with him at the time was irritating.

[ Click here to read more ]

Vote

Comments (1)

Add Comments

[ Link ]

Posted By: J. J. Lynn - Category: No Category

Email this Post to a Friend

Chapter 10: Balancing Dialysis and School again

February 14th 2007 18:57

Once I got use to being on dialysis 3 days a week for 3hrs each treatment I was able to have a productive high school experience. I had dialysis Tuesday, Thursday and Saturday. Friday was still the night I hungout at the football games with my friends. It was a whole new group of friends for High School. Well, almost all new.

I was now in college prep classes and met two other girls named Jen so we just formed our own little group. We all called each other by nicknames. My nickname J. J. has stuck with me to this day. Jim had moved behind one of my girlfriends and she introduced him to me.
[ Click here to read more ]

Vote

Add Comments

[ Link ]

Posted By: J. J. Lynn - Category: No Category

Email this Post to a Friend

Chapter 9" Vanity can kill a kidney

February 10th 2007 19:44

My teeth have always been unattractive to say the least. Because I couldn’t get enough calcium on the strict diet I was on before my kidney transplant my adult teeth did not come in and the teeth that had not fell out naturally are very yellow. I was told they have no enamel so they would never look good with out cosmetic surgery of some kind.

Before I started high school the look of my teeth were really bothering me. My dentist said he could make the beautiful. Just what a teenager wants to hear. He was going to straighten what I had and put white covers over them. Everything he said sounded great.
[ Click here to read more ]

Vote

Comments (1)

Add Comments

[ Link ]

Posted By: J. J. Lynn - Category: No Category

Email this Post to a Friend

Chapter 8: My life long best friend

February 8th 2007 22:39

All girls need a life long best friend. I met Jody Lee in 3rd grade. We had the same taste in music and dreams for our future. We were going to be STARS! At eight-years old we knew we had the voices to go far in the music business.

Jody was the next Stevie Nicks. I was sure to be the next Olivia Newton-John or Barbara Striasand. We practiced by sing along to records and the radio. We were sure to go to Hollywood someday. While exploring these dreamy thoughts we tormented my little brother, got in trouble at school, and spent hours shopping at the Niles Eastwood Mall and Skating at Cortland roller rink on weekends.
[ Click here to read more ]

Vote

Comments (1)

Add Comments

[ Link ]

Posted By: J. J. Lynn - Category: No Category

Email this Post to a Friend

Chapter 7: Junior High was party time

February 6th 2007 19:14

The most fun I ever had in life, other than college, has to be my junior high years. I was healthy. I made friends with like minded girls, Lodi and Linda, who had gone through some rough times to get to wear we met. I was the voice of reason and they made sure I learned having a little fun that might be a bit dangerous wouldn't kill you.

Lodi lived about a mile from me. My Dad and her dad got in trouble together when they were teenagers. They drank, smoked and stole some road signs along they way. My Dad still had some of the road side cones at our house. My mom even told me a story that when her and my Dad were first married on there first Christmas my Dad, Lodi’s Dad and my Dad’s two brothers went and got my mom the large pine she wanted the most.
[ Click here to read more ]

Vote

Add Comments

[ Link ]

Posted By: J. J. Lynn - Category: No Category

Email this Post to a Friend

Chapter 6: Father and Daughter complications

February 5th 2007 16:38

A Kidney Transplant can be difficult and emotional for both the donor and recipient. Add the puberty into the mix of high steroids and things can get ugly. I was 10 when I received one of my fathers kidneys. There was no surgical complications. But as the family joke goes I walked into the hospital and rolled out. I joked with my mom I looked more like her now.

My weight gain from 95 pounds to 160 plus pounds wasn’t funny for long. The medication I was on caused mood swings. I was also starting to go through puberty so the mood swings were doubled. I would cry for practically no reason. Then I would be laugh in the next few minutes because I could believe what I was crying over.
[ Click here to read more ]

Vote

Add Comments

[ Link ]

Posted By: J. J. Lynn - Category: No Category

Email this Post to a Friend

Chapter 5: Balancing Dialysis and grade school

February 3rd 2007 00:24

When I had Steven-Johnson Syndrome they were not able to keep my electrolytes stable, so I had to go on dialysis. I was nine-years old. My mom would drive me to Cleveland three days a week. There were no dialysis units nearer to where I lived at the time. I went Wednesday, Friday and Saturday early in the morning. I would have to miss school two days a week. To keep up I would just have a little extra homework to do.

For dialysis they used the fistula that was created in my left arm when I was six. A fistula is created by joining an artery and a vein which increases the blood flow in the vein. It feels like it is buzzing when feel the site. Some may even think it is a machine in your arm. I had brought my arm to show & tell when I got it and the kids thought it was kind of cool. One of my mom’s co-workers was convinced there was a machine in my arm.
[ Click here to read more ]

Vote

Add Comments

[ Link ]

Posted By: J. J. Lynn - Category: No Category

Email this Post to a Friend

Chapter 4: Stevens-Johnson Syndrome:A rare condition and I had it

February 1st 2007 15:54

Stevens-Johnson Syndrome starts as a “red rash across the face and the trunk of the body, which can continue to spread to other parts of the body. The rash can form into blisters, and these blisters can form in areas such as the eyes, mouth and vaginal area. The mucous membranes can become inflamed...layers of the skin can also come away with ease and often the skin peels away in sheets. The hair and nails can also come away in some cases. Visit link for more info Really Long Link

In the summer of my 7th year this happened to me due to a alergic reaction to the pink die in septra I am told. When the itchy rash started my mom took me to our family dermatologist, Dr. Helms. He gave me lotion thinking it was scabbys and we notified Cleveland Rainbow and Children's hospital to keep my Doctor up to date.
[ Click here to read more ]

Vote

Add Comments

[ Link ]

Posted By: J. J. Lynn - Category: No Category

Email this Post to a Friend

1 Posts

3 Posts

1 Posts