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Life with chronic renal failure - dialysis patient, kidney, dialysis, childhood

Life with chronic renal failure

Sparkle People

February 26th 2008 15:37
I found a new diet site called http://www.sparkpeople.com. For now my weight is the same. I have just 21 days until my trip to california. That will be fun and I know I will walk a lot but I will also eat plenty since I never diet on vacation. Plus with a starbucks on every corner that will be awsome. I am looking forward to my vacation this year like every year. I have had enough of this cold amnd snow. Please spring come to Ohio and stay for awhile



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Diet update

February 20th 2008 20:49
I have lost about ten pounds on lean cuisine/special K diet.I had some ups and downs but I think I am back on track. I had a birthday party to go too with open buffet and ate more than I should have but less than others ate. My whole family are big eaters.

When I was in the hospital I gain some weight because I needed to eat more protein to help my body heal. I know I needed to eat more at that time but I felt guilty.
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Three and a half days in the hospital

January 26th 2008 15:19
I have not been in the hospital for ten years. I have had little colds and low grade fevers that I had to call Cleveland and/or my local Doctor. They just gave me antibiotics and all was well in a few days.

On Saturday January 19, 2008 I woke up with a bladder infection that worsened as the day went by. I even went home from work after only an hour and a half because the pressure was so bad and I was in the bathroom urinating more than I was working. I didn’t feel good so my mom called Cleveland Clinic and my local Doctor. Both were out of town for the weekend.
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diet and eating out

January 14th 2008 14:43
I have lost a little weight since my last post. I'm sticking to the coffee, special K, 100 cal pack, lean cuisine and fruit. I exercise on my gazelle for 1/2hour or more on the days I don't work. My mom still leaves her trail mix around but she hasn't made any big meals thinking I would eat them.

It is easy to diet on the days I work because I am so busy at work I don't even think of eating until lunch or snack. When I am home it is like I know the food is available so it makes me feel hungry. All in my head I suppose.
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Dieting while on prednisone

January 7th 2008 14:59
Week 1:

Last year one of my new year’s resolutions was to keep eating healthy. Well, even eating healthy foods to often can be bad because my weight crept up to a bit over 140 and I am only 4ft9in. This year I have to loose a bit of weight. I am more comfortable at 115-120lb. But since I am on prednisone it makes me feel hungry even if my body is full and fine. I just have to block that out.
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Update on how I'm doing

June 15th 2007 23:41
I see that my last post left a few wondering what was next in my life. I assure all of you all is well. I have had this working kidney almost nine years. I will write the second part of my book soon...I attend KSU and now I work at JCPenney. I just appriciate that I have had all the oportunities to do all the things I have done in my life so far and meet the people I have, including Billy Corgan of smashing pumpkins fame.

Thanks for read. Stay tuned for my years as a music critic and other great fun I have had to get to thi point in my life.
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Life with chronic renal failure (see full 1st draft here)

March 14th 2007 01:51
This story is based on things I have gone through growing up with chronic renal failure. I hope to get ideas to make the story more interesting if it is to boring and see if eventually it is good enough to be a published book.

Life with chronic renal failure

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Epilogue

March 12th 2007 14:26
On August 11, 2007 it will be 9 years I have had this great working kidney. I take eight medication a day so this kidney last as long as possible: one Bacterium, one Prednisone, 1 Lipitor, one Calcium supplement, one baby aspirin and one Cartizem once a day and 2 prograph, and tree Cellcept twice a day. I learned long ago to take it all in one swallow.

I did not gain nearly as much weight after this transplant as I did my first so I was able to loose the weight within a year. I had a very large bloated moon face when I went back to Kent State Trumbull Campus and I was still a bit bloated when I started my first semester at Kent State Main Campus. But that did not last long with all the walking and going to the gym before class sometimes.
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Chapter 14: Why take away my hope

March 7th 2007 18:12
I was on dialysis eight years. It was starting to take a toll on me emotionally. There was so much I wanted to do. I was excepted into the journalism program at Kent State, but to finish my degree I was told I had to go to the main campus.

I took an introduction to journalism at Kent State Trumbull Branch. I loved it. The professor helped a few students including me start an on campus paper. The campus had not had a paper in three years before that. We learned page maker. It took hours to do each issue but it was quite satisfying to see my stories in printed. I was the Entertainment Editor and business Editor collecting ads to run in each issue. Things were getting exhausting with studying, working on the paper and going to dialysis three days a week.
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Chapter 13:Will I ever get a working Kidney transplant again?

March 4th 2007 03:52
Another 3 a.m. call to go wait for a possible kidney transplant at St. Elizabeth’s Hospital. The transplant unit at St. Elizabeth was still fairly new when I was called. I was actually in the same room waiting with the other girl that was up for the same kidney. We were chatting and laughing. She deserved a new start as much as I did. She was even a bit younger than me.

Why couldn’t there be two kidneys available so we both would get one? Why can’t there be a way for everyone who needed an organ transplant to get what they needed? But there was only one. Most people don’t even get a chance to get that. I was on my third and this would have been my roommates first kidney transplant.
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February 2008
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January 2008
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