Chapter 4: Stevens-Johnson Syndrome:A rare condition and I had it
February 1st 2007 15:54
Stevens-Johnson Syndrome starts as a “red rash across the face and the trunk of the body, which can continue to spread to other parts of the body. The rash can form into blisters, and these blisters can form in areas such as the eyes, mouth and vaginal area. The mucous membranes can become inflamed...layers of the skin can also come away with ease and often the skin peels away in sheets. The hair and nails can also come away in some cases. Visit link for more info Really Long Link
In the summer of my 7th year this happened to me due to a alergic reaction to the pink die in septra I am told. When the itchy rash started my mom took me to our family dermatologist, Dr. Helms. He gave me lotion thinking it was scabbys and we notified Cleveland Rainbow and Children's hospital to keep my Doctor up to date.
With in hours I was worse. My mom rushed me to Cleveland. It is about a three hour drive and she made it in under two hours. I was convulsing on the way there. All I remember is starting the drive then waking up in the hospital. With in hours my skin was bubbling and peeling like I was burning from the inside out. My hair even stated coming off my scalp and my fingers and toe nails lifted in their bed. Luckily I don’t remember the pain because they started me on morphine as soon as they show what was happening. My mom is glad because she said it looked so awful and painful.
It wasn’t anyone’s fault that it wasn’t caught sooner. Steven-Johnson usually only happens in adults. Plus at the time there had only been five reported cases in the United States. Dr. Hems felt he should have known. We asured him it was not anything he could have known about.
I do remember after coming out of isolation I had a really fun room mate, Wendy. We both had a crush on Tommy from down the hall. He had COPD. One of the nurses let me help with his treatment in which I had to pound on his back to breakup the mucus in his chest. My mom even through a party for all us preteen in the teen lounge with Pizza and pop. Before I was released Tommy’s mom gave me a picture of him to carry in my wallet.
In the summer of my 7th year this happened to me due to a alergic reaction to the pink die in septra I am told. When the itchy rash started my mom took me to our family dermatologist, Dr. Helms. He gave me lotion thinking it was scabbys and we notified Cleveland Rainbow and Children's hospital to keep my Doctor up to date.
With in hours I was worse. My mom rushed me to Cleveland. It is about a three hour drive and she made it in under two hours. I was convulsing on the way there. All I remember is starting the drive then waking up in the hospital. With in hours my skin was bubbling and peeling like I was burning from the inside out. My hair even stated coming off my scalp and my fingers and toe nails lifted in their bed. Luckily I don’t remember the pain because they started me on morphine as soon as they show what was happening. My mom is glad because she said it looked so awful and painful.
It wasn’t anyone’s fault that it wasn’t caught sooner. Steven-Johnson usually only happens in adults. Plus at the time there had only been five reported cases in the United States. Dr. Hems felt he should have known. We asured him it was not anything he could have known about.
I do remember after coming out of isolation I had a really fun room mate, Wendy. We both had a crush on Tommy from down the hall. He had COPD. One of the nurses let me help with his treatment in which I had to pound on his back to breakup the mucus in his chest. My mom even through a party for all us preteen in the teen lounge with Pizza and pop. Before I was released Tommy’s mom gave me a picture of him to carry in my wallet.
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